“Bucket List Baby” Dies to Genetic Disorder: Her Short Life Though Has Raised Worldwide Awareness

Last week a Bellaire baby made news locally and internationally for her parents unique efforts to complete a “bucket list” of life experiences before a rare genetic disorder, known as Spinal Muscular Atrophy, was expected to take her life. Predicted to live only 18-months, she died on Sunday at only 5-months due to a collapsed lung and cardiac arrest. Still her parents have maintained her blog, and will continue to raise funds and awareness for this devastating condition. (Video: KHOU 11 News)